Bill
HR 4618
Non-binding House resolution honoring Turner Syndrome, raises awareness, highlights early diagnosis and support for affected individuals and families; no funding or legal changes.
Status: Adopted (resolution)
Introduced: Originally introduced Feb 24, 2023; reintroduced/received further action Feb 17, 2025 and July 22, 2025
Primary sponsor: W. Gregory Steube; Cosponsor: Mary E. Miller
Related/Companion bill: S. 312
Note: H.R. 4618 is a House resolution (non‑binding, ceremonial). Multiple versions/introductions are recorded in 2023 and 2025; the resolution has been adopted in prior action(s).
Purpose and intent
- To honor and support females living with Turner Syndrome, raise awareness of the condition, and acknowledge the courage of affected individuals and their families.
- To highlight the importance of early diagnosis, medical intervention, family and community support, and public awareness (including observing Turner Syndrome awareness in February).
Key provisions and findings (summary of resolution text)
- Defines Turner Syndrome as a genetic chromosomal condition in which one X chromosome is missing or structurally altered.
- States prevalence and impact:
- Affects approximately 1 in every 2,500 live female births.
- Estimates roughly 85,337 females in the United States live with Turner Syndrome.
- Lists possible health consequences: ovarian failure and infertility, congenital heart disease, osteoporosis, type 2 diabetes, obesity, and nonverbal disabilities.
- Notes there is currently no known cause or cure.
- Emphasizes that early diagnosis and specialist intervention improve long‑term health outcomes.
- Encourages support from families, caregivers, medical professionals, advocacy organizations, and public awareness campaigns (noting February as the month of increased awareness).
- Officially honors and expresses support for individuals with Turner Syndrome and their families.
Who is affected
- Primary: infants, children, girls, and women with Turner Syndrome and their families/caregivers.
- Secondary: healthcare providers, medical specialists, public health and advocacy organizations, and institutions that might engage in awareness, screening or supportive services.
- Because this is a non‑binding resolution, it does not create legal obligations or direct funding.
Procedural/administrative notes
- As a House resolution, H.R. 4618 is symbolic and declaratory in nature — it recognizes and encourages awareness and support but does not appropriate funds or create statutory changes.
- Legislative actions recorded include introductions and adoptions in 2023 and 2025 and referral (July 22, 2025) to House committees for jurisdictional consideration of any provisions that might fall to those committees.
- Companion measure S. 312 exists in the Senate.
Potential impact
- Immediate effect is symbolic recognition and federal acknowledgement of Turner Syndrome and the needs of those affected.
- May spur increased public awareness efforts, encourage voluntary action by federal and state health agencies, medical societies, and nonprofits, and support advocacy for screening, research, and services—though any funding or regulatory changes would require separate, binding legislation.
Compiled from official sources — confirm details with the bill’s official record.
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