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Bill

Bill

SR 95

Honoring Brydon Feister as a 2025 Division II State Wrestling Champion.

136th Legislature (2025-2026) Introduced by Casey Weinstein

Designates February 15, 2024 as Angelman Syndrome Awareness Day to raise public and medical awareness and support research and services for those affected.

Adopted
0
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Bill Summary · SR 95

SR 95 — Angelman Syndrome Awareness Day (Senate Resolution)

Purpose / Intent

SR 95 is a ceremonial Senate resolution designating February 15, 2024, as “Angelman Syndrome Awareness Day.” Its stated intent is to raise public and medical-community awareness about Angelman syndrome — a rare neuro‑genetic disorder — and to emphasize the importance of research and support services for affected individuals and families.

Key provisions

  • Officially designates February 15, 2024, as Angelman Syndrome Awareness Day.
  • Describes Angelman syndrome and its common features to inform readers, including:
    • Estimated prevalence: about 1 in 15,000 live births (roughly 500,000 people worldwide referenced).
    • Typical onset of noticeable developmental problems by 6–12 months of age.
    • Common signs: motor (walking/balance) disorders, gastrointestinal issues, seizures, and little or no speech.
    • Notes that life expectancy is generally normal and that many individuals have a characteristically happy/excitable demeanor.
  • States the importance of raising awareness in both the general public and the medical community to improve diagnosis, research, and support services.

Who is affected

  • Directly honors and raises awareness for:
    • Individuals living with Angelman syndrome and their families/caregivers.
    • Medical professionals and researchers (through encouragement of improved recognition and research support).
  • Indirectly benefits advocacy groups and service providers by increasing public recognition of the condition.
  • Does not create programs, funding, or regulatory requirements.

Procedural / timeline details

  • Text of the resolution identifies Senators (e.g., Hertel, McDonald Rivet, Wojno, Shink, Chang, Klinefelt, Huizenga, Santana) as sponsors in the Senate version included in the record.
  • Adopted by the Senate (adopted version dated February 14, 2024) and recorded as SR‑95, “As Adopted by Senate, February 14, 2024.”
  • Administrative steps in the record include readings, adoption, enrollment, and transmittal consistent with a non‑statutory resolution (ceremonial).

Impact and limitations

  • Symbolic/ceremonial: SR 95 does not appropriate funds, create legal obligations, or change existing law. Its primary effect is recognition and public awareness.
  • Potential practical impacts are indirect: increased awareness can improve early diagnosis, referral to services, and support for research and advocacy efforts.

Note: The source document contains multiple unrelated drafts and different SR‑95 texts from other jurisdictions and subject matters. This summary focuses on the SR 95 text that designates February 15, 2024, as Angelman Syndrome Awareness Day.

Compiled from official sources — confirm details with the bill’s official record.

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