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Bill

SB 2799

GENETIC INFORMATION PRIVACY

104th Regular Session Introduced by Dave Koehler and 1 co-sponsor

Illinois bill establishing consent requirements and use restrictions for genetic information collection to prevent discrimination by employers and insurers.

Rule 3-9(a) / Re-referred to Assignments
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Bill Summary · SB 2799

Legislative bill overview

SB 2799 is a privacy protection bill introduced in Illinois that regulates the collection, use, and sharing of genetic information. The bill establishes requirements for obtaining informed consent before collecting genetic data and restricts how genetic information can be used by employers, insurers, and other entities. It creates enforcement mechanisms and penalties for violations of genetic privacy rights.

Why is this important

Genetic information is uniquely sensitive because it can reveal predispositions to diseases, family medical history, and ancestry—data that could be misused for discrimination in employment or insurance. As genetic testing becomes more accessible and companies increasingly collect DNA data, legal protections are critical to prevent unauthorized use. This bill addresses a gap in existing privacy law by specifically protecting genetic information at a state level.

Potential points of contention

  • Scope of "genetic information": Defining what qualifies as protected genetic data versus general health information could be contentious, affecting which entities fall under regulations
  • Employer and insurer exceptions: Balancing privacy rights against legitimate business needs (e.g., workplace safety, underwriting) will likely generate debate about carve-outs and limitations
  • Enforcement and compliance costs: Small businesses and healthcare providers may argue compliance burdens are excessive, while privacy advocates may worry penalties are insufficient to deter violations

Compiled from official sources — confirm details with the bill’s official record.

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