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SJR 121

General Assembly, Confirmation of Appointment - Lucas Hilliard, Standards Recommendation Committee for English Language Arts -

114th Regular Session (2025-2026)

Designates May 15 as Tuberous Sclerosis Complex Awareness Day in New Jersey; Governor to issue proclamations to raise awareness, support families and research - no new funding.

Companion HJR 196 substituted for SJR
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Bill Summary · SJR 121

Summary: SJR 121 / JR-9 — Tuberous Sclerosis Complex Awareness Day (New Jersey)

Purpose

Designate May 15 of each year as “Tuberous Sclerosis Complex Awareness Day” in New Jersey. The measure is ceremonial in nature and aims to raise public awareness of tuberous sclerosis complex (TSC) and the organizations that support research and families affected by the condition. The Governor would issue an annual proclamation recognizing the day and encourage public observation through appropriate activities and programs. The resolution takes effect immediately.

Key Provisions

  • Designation: May 15 each year is designated as “Tuberous Sclerosis Complex Awareness Day” in New Jersey.
  • Proclamation: The Governor is respectfully requested to issue an annual proclamation recognizing the day and to urge public officials and New Jersey residents to observe it with suitable activities and programs.
  • Effective Date: This joint resolution takes effect immediately.
  • Status: Enacted as P.L.2025, JR-9 on May 9, 2025.

Context and Rationale (Background Included in the Bill)

  • Tuberous Sclerosis is described as a rare genetic condition affecting multiple organ systems, caused by abnormalities in the TSC1 or TSC2 genes that regulate cell growth, leading to benign tumors in the brain, heart, kidneys, eyes, and lungs.
  • The condition can cause epilepsy and developmental delays due to abnormal brain structures and fluid dynamics.
  • Neuropsychiatric conditions, including autism, ADHD, anxiety, depression, impulsivity, and aggression, are commonly associated; autism is present in a substantial portion of affected individuals.
  • There is no cure; awareness and research funding are emphasized, with collaboration among organizations such as the TSC Alliance and Tuberous Sclerosis Association.
  • The bill’s statement notes the global and U.S. prevalence and underscores the importance of early diagnosis, therapies, and prevention mechanisms through research and public awareness.

Affected Parties

  • Residents of New Jersey and public officials, who would be encouraged to observe the day.
  • Families and individuals affected by TSC, researchers, and advocacy organizations that focus on TSC awareness and support.
  • No new funding or budgetary requirements are imposed by the resolution; it is primarily symbolic and educational.

Legislative History (Selected Milestones)

  • Introduced: June 6, 2024
  • Senate: Passed March 24, 2025 (39-0)
  • Assembly: Passed March 24, 2025 (75-0-0); substituted for AJR181
  • Senate (final action): Approved May 9, 2025; designated as P.L.2025, JR-9
  • Related: AJR 181 (companion measure)

Comparison to Related Measures

  • Companion bill AJR 181 exists; the Assembly version was substituted by the Senate version during the 2025 legislative process.
  • Both versions share identical substantive text, focusing on the designation and annual proclamation by the Governor.

Conclusion

SJR 121 / JR-9 establishes a yearly, commemorative observance of May 15 as Tuberous Sclerosis Complex Awareness Day in New Jersey. It seeks to promote public awareness, support for affected individuals and families, and ongoing research efforts through a gubernatorial proclamation and public participation. The bill passed both houses unanimously and was enacted into law in May 2025.

Compiled from official sources — confirm details with the bill’s official record.

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