Bill

HRES 385

Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".

119th Congress Introduced by Ben Cline

HRES 385 designates May 2, 2025, as NKH Awareness Day to boost understanding of nonketotic hyperglycinemia, benefiting patients and families through education and support.

Submitted in House

WeVote Research Nonpartisan

Bill Summary · HRES 385

Summary of HRES 385: NKH Awareness Day Resolution

Bill Overview

Bill Number: HRES 385
Title: Expressing support for the designation of May 2, 2025, as "NKH Awareness Day"
Status: Submitted in House
Introduced: May 5, 2025
Classification: Resolution

Purpose and Intent

The primary purpose of HRES 385 is to express the House of Representatives' support for the establishment of May 2, 2025, as "NKH Awareness Day." This resolution aims to raise awareness about nonketotic hyperglycinemia (NKH), a rare genetic disorder that affects the metabolism of glycine, an amino acid. By designating a specific day for awareness, the resolution seeks to enhance public understanding and education regarding this condition.

Key Provisions

The resolution includes two main provisions:
1. Support for NKH Awareness Day: The House of Representatives formally supports the designation of May 2, 2025, as NKH Awareness Day.
2. Recognition of Importance: The resolution acknowledges the critical need for increased awareness and education surrounding nonketotic hyperglycinemia, highlighting the challenges faced by individuals affected by this disorder and their families.

Impact

Target Audience: The resolution primarily targets individuals and families affected by NKH, healthcare professionals, and the general public. By raising awareness, it aims to foster a better understanding of the disorder, which may lead to improved support and resources for those impacted.
Educational Efforts: The resolution encourages educational initiatives that inform the public and medical community about NKH, potentially leading to better diagnosis, treatment, and support for patients.

Legislative Actions

2025-05-05: The resolution was referred to the House Committee on Energy and Commerce for further consideration.
2025-05-05: The resolution was submitted in the House.

Conclusion

HRES 385 serves as a significant step towards increasing awareness and understanding of nonketotic hyperglycinemia. By designating May 2, 2025, as NKH Awareness Day, the resolution aims to unite efforts in education and support for those affected by this rare disorder.

Compiled from official sources — confirm details with the bill’s official record.