Bill

HRES 253

Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

119th Congress Introduced by María Salazar and 1 co-sponsor

HRES 253 designates May 15, 2025, as Prader-Willi Syndrome Awareness Day to boost awareness, support research, and aid families affected by this rare disorder.

Submitted in House

WeVote Research Nonpartisan

Bill Summary · HRES 253

Summary of HRES 253 - Prader-Willi Syndrome Awareness Day

Bill Overview

Bill Number: HRES 253
Title: Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day"
Status: Submitted in House
Introduced Date: March 25, 2025
Classification: Resolution

Purpose and Intent

The primary purpose of HRES 253 is to express support for the establishment of May 15, 2025, as "Prader-Willi Syndrome Awareness Day." This designation aims to raise awareness about Prader-Willi syndrome (PWS), promote research efforts, and enhance public understanding of the disorder.

Key Provisions

The resolution includes several important provisions:

Support for Awareness Day: The House of Representatives formally supports the designation of Prader-Willi Syndrome Awareness Day.
Recognition of Advocacy Efforts: The resolution applauds the work of advocates and organizations dedicated to:
- Raising awareness about PWS.
- Promoting research initiatives.
- Providing education and support to individuals and families affected by the syndrome.
Acknowledgment of Commitment: It recognizes the dedication of various stakeholders, including:
- Parents and families of individuals with PWS.
- Researchers and health professionals focused on finding effective treatments and potential cures for the disorder.
Importance of Key Areas:
- Awareness and Education: Emphasizes the need for improved public awareness and education regarding PWS.
- Diagnosis: Encourages accurate and early diagnosis of the syndrome.
- Research Advancement: Supports the advancement of research related to PWS.
- Development of Treatments: Advocates for the development of new treatments, diagnostics, and potential cures.
- Regulatory Pathways: Identifies the need for regulatory pathways that facilitate drug development for rare diseases like PWS.

Affected Parties

The resolution impacts a wide range of stakeholders, including:
- Individuals diagnosed with Prader-Willi syndrome.
- Families and caregivers of those affected by the syndrome.
- Researchers and healthcare professionals involved in the study and treatment of PWS.
- Advocacy organizations working to raise awareness and support for PWS.

Legislative Actions

March 25, 2025: The bill was referred to the House Committee on Energy and Commerce and submitted in the House.

Conclusion

HRES 253 serves as a significant step towards increasing awareness and understanding of Prader-Willi syndrome. By designating May 15, 2025, as Prader-Willi Syndrome Awareness Day, the resolution aims to foster a supportive environment for research and advocacy, ultimately benefiting those affected by this rare disorder.

Compiled from official sources — confirm details with the bill’s official record.