WeVote
Log In

Bill

Bill

HB 1265

establish provisions related to the sharing of information with the national marrow donor program.

2025 Regular Session Introduced by Matt Roby

South Dakota authorizes sharing donor information with the National Marrow Donor Program to expand bone marrow and stem cell transplant patient access to compatible donors.

Signed by the Governor on 2025-03-13 H.J. 542
#driverlicense #publichealthandsafety
0
WeVote Research Nonpartisan
Bill Summary · HB 1265

Legislative bill overview

HB 1265 establishes legal provisions allowing South Dakota to share donor information with the National Marrow Donor Program (NMDP). The bill streamlines the process for identifying and recruiting potential bone marrow and stem cell donors by enabling data sharing between state agencies and the NMDP registry.

Why is this important

Bone marrow and stem cell transplants are life-saving treatments for blood cancers, sickle cell disease, and other serious conditions. Expanding donor pool access through information sharing increases the likelihood that patients—particularly those from underrepresented populations—can find compatible matches. The bill addresses a practical healthcare need without requiring individuals to undergo additional registration steps.

Potential points of contention

  • Privacy concerns: Citizens may not expect their donor registry information shared with federal programs; the bill's privacy safeguards and data security protocols warrant scrutiny
  • Opt-in vs. automatic sharing: Unclear whether individuals must affirmatively consent or if sharing occurs by default for registered donors
  • Scope of data: The specific information categories shared (names, medical history, genetic markers) and retention policies should be clearly defined to prevent mission creep

Compiled from official sources — confirm details with the bill’s official record.

Sign in to ask a question.