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SB 1697

DNA and Genetic Testing - As introduced, directs the department of health to test for the presence of sickle cell trait in each newborn and, if the test results are positive for sickle cell trait, to notify the parent or legal guardian of the newborn tested as soon as practicable. - Amends TCA Title 68, Chapter 5.

114th Regular Session (2025-2026) Introduced by Raumesh Akbari

Requires Tennessee newborn screening for sickle cell trait with mandatory parental notification of positive results.

Recommended for passage, refer to Senate Calendar Committee
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Bill Summary · SB 1697

Legislative bill overview

SB 1697 requires Tennessee's Department of Health to screen all newborns for sickle cell trait and notify parents of positive results. The bill amends Tennessee's health code to establish this mandatory testing and notification protocol as part of routine newborn screening procedures.

Why is this important

Sickle cell trait affects approximately 1 in 12 African Americans and can have health implications for carriers, including increased risk of complications in certain medical conditions. Early identification allows parents and healthcare providers to make informed medical decisions and monitor for potential health issues throughout the child's life.

Potential points of contention

  • Scope of mandatory screening: Whether genetic screening should be mandatory rather than opt-in, raising questions about parental autonomy and medical decision-making authority
  • Data privacy and genetic information: Concerns about how genetic test results are stored, shared, and potentially used by government or private entities in the future
  • Equity and application: Questions about whether screening protocols adequately serve all populations equally and whether notification processes are accessible to non-English speakers or underserved communities

Compiled from official sources — confirm details with the bill’s official record.

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