Deafblind DATA Act

Summary of HR 2947: Deafblind DATA Act

Overview

The Deafblind DATA Act (HR 2947) aims to address the unique needs of individuals who are deafblind—those experiencing both hearing and vision loss—by establishing a comprehensive count of this population in the United States. The bill was introduced in the House on April 17, 2025, and has been referred to the House Committee on Oversight and Government Reform.

Purpose and Intent

The primary intent of the Deafblind DATA Act is to:
- Establish a centralized count of individuals who are deafblind in the U.S. to better understand and serve their needs.
- Highlight the challenges faced by the deafblind community, including difficulties in accessing information, communication barriers, and impacts on social and emotional well-being.
- Ensure that individuals who are deafblind receive appropriate support and resources.

Key Provisions

1. Data Collection:

   • The bill mandates the Bureau of the Census to cross-reference existing data from the American Community Survey to estimate the number of individuals who experience both hearing and vision loss.
   • Currently, the Census collects data on individuals who are deaf or blind separately, but does not provide a combined count.

2. Estimates of the Deafblind Population:

   • The bill references various estimates of the deafblind population, indicating that between 70,000 to 100,000 people are estimated to be deafblind, with some estimates suggesting as many as 2.47 million Americans may experience combined hearing and vision loss.

3. Support for the Deafblind Community:

   • By obtaining accurate data, the bill aims to improve access to services and resources tailored to the needs of the deafblind population, enhancing their overall quality of life.

Impact

• Individuals Affected: The bill directly impacts the estimated 10,000 children and 40,000 adults identified as deafblind, as well as the broader community of individuals with combined hearing and vision loss.
• Service Providers: Organizations and agencies that provide support and services to the deafblind community will benefit from improved data, allowing for better resource allocation and program development.

Legislative Actions

• Introduced: April 17, 2025
• Referred to Committee: The bill has been referred to the House Committee on Oversight and Government Reform for further consideration.

Sponsors

The Deafblind DATA Act is sponsored by a diverse group of lawmakers, including:
- Primary Sponsor: April McClain Delaney
- Cosponsors: Notable cosponsors include Michael Lawler, Lloyd Doggett, Ed Case, and Alexandria Ocasio-Cortez, among others.

Conclusion

The Deafblind DATA Act seeks to fill a critical gap in understanding the deafblind population in the U.S. by establishing a comprehensive count. This initiative aims to enhance the support and resources available to individuals who are deafblind, ultimately improving their quality of life and access to necessary services.