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Bill

J 98

Commemorating the 33rd Anniversary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day in the State of New York

2025 Regular Session Introduced by Roxanne Persaud

Non-binding NY resolution recognizes the 33rd Anniversary of ME/CFS Awareness Day, promotes awareness and resources, with no new laws or funding.

ADOPTED
1
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Bill Summary · J 98

Summary of Bill J 98 – Commemorating the 33rd Anniversary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day in the State of New York

Overview

Bill J 98 is a non-binding resolution in the New York State Legislature that commemorates the 33rd anniversary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day in New York. The measure is designed to recognize the impact of ME/CFS and to observe a day for awareness, education, and public acknowledgment within the state.

Purpose and Intent

  • Highlight the importance of ME/CFS awareness in New York.
  • Acknowledge the challenges faced by ME/CFS patients and their families.
  • Promote awareness, education, and public information about ME/CFS resources and advocacy.
  • Encourage state agencies and public institutions to observe the day and share information that supports patients and caregivers.

Key Provisions

  • Formal recognition by the New York State Legislature of the 33rd Anniversary of ME/CFS Awareness Day.
  • A statement of support for efforts to increase public understanding, medical awareness, and access to resources for ME/CFS patients.
  • Guidance to state entities (as appropriate in a memorial resolution) to observe and promote awareness activities and distribute information about ME/CFS resources.

Note: As a resolution, the bill does not enact new law or authorize new spending. It serves as an official expression of the Legislature’s recognition rather than a regulatory or fiscal measure.

Affected Parties

  • ME/CFS patients and advocacy communities within New York.
  • Families and caregivers of individuals with ME/CFS.
  • State agencies and public institutions that may participate in awareness activities or disseminate information.

Procedural and Timeline Details

  • Introduced: January 9, 2025.
  • Legislative actions indicate initial referral to the Finance committee, followed by passage to the Calendar for consideration.
  • Adopted on January 14, 2025, indicating final approval in the legislative chamber(s) where the measure originated and moved to the other house for enactment as a resolution (if applicable within the chamber process).
  • Primary sponsor: Roxanne J. Persaud.

Status

  • Adopted (a commemorative resolution acknowledging ME/CFS Awareness Day in New York).

Impact and Takeaways

  • The bill’s adoption formally elevates ME/CFS awareness within state government.
  • It signals support for ongoing education and resource-sharing efforts related to ME/CFS.
  • As a resolution, it does not create new duties, policies, or funding commitments, but it can encourage public messaging and align state-facing communications with ME/CFS awareness goals.

Compiled from official sources — confirm details with the bill’s official record.

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