Bill
H 1170
Overview: Bill Number: H 1170, Title: An Act relative to access to care for Ehler Danlos syndrome patients, Status: Hearing scheduled for 06/24/2025 from 10:30 AM-02:00 PM in Gardn
Overview: Bill Number: H 1170, Title: An Act relative to access to care for Ehler Danlos syndrome patients, Status: Hearing scheduled for 06/24/2025 from 10:30 AM-02:00 PM in Gardner Auditorium, Introduced: February 27, 2025
Purpose and Intent: This bill aims to improve access to healthcare and support services for individuals diagnosed with Ehler Danlos syndrome (EDS), a group of rare genetic disorders that affect the connective tissues in the body.
Key Provisions:
- Requires health insurance plans to cover the diagnosis, treatment, and management of EDS, including specialized medical care and physical therapy
- Establishes a state-funded EDS patient registry and research program to better understand the prevalence and needs of the EDS community
- Directs the state health department to develop educational resources and training for healthcare providers on the recognition and management of EDS
Affected Parties and Impacts:
- Individuals living with Ehler Danlos syndrome, who will have improved access to necessary medical care and support services
- Health insurance providers, who will be required to cover EDS-related treatments and services
- Healthcare providers, who will receive additional training and resources to better serve EDS patients
Procedural and Timeline Considerations:
This bill has been introduced in the state legislature and a hearing is scheduled for June 24, 2025, from 10:30 AM to 2:00 PM in the Gardner Auditorium. The next steps in the legislative process will depend on the outcome of this hearing and any further action taken by the legislature.
Compiled from official sources — confirm details with the bill’s official record.
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