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Bill

H 1189

An Act providing insurance coverage for Alfi’s syndrome

194th Legislature (2025-2026) Introduced by Natalie Higgins

Overview: H 1189, "An Act providing insurance coverage for Alfi's syndrome", Hearing scheduled for 06/24/2025 from 10:30 AM-02:00 PM in Gardner Auditorium, Introduced on February 2

Accompanied a study order, see H5048
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Bill Summary · H 1189

Overview: H 1189, "An Act providing insurance coverage for Alfi's syndrome", Hearing scheduled for 06/24/2025 from 10:30 AM-02:00 PM in Gardner Auditorium, Introduced on February 27, 2025.

Purpose and Intent: The purpose of this bill is to require health insurance plans in Montana to provide coverage for the treatment of Alfi's syndrome, a rare genetic disorder. The intent is to ensure that individuals affected by this condition have access to the necessary medical care and support.

Key Provisions:
- Mandating that all health insurance plans operating in Montana cover the diagnosis, treatment, and management of Alfi's syndrome
- Prohibiting insurance companies from imposing any limitations, exclusions, or cost-sharing requirements that are more restrictive than those applied to other medical conditions

Affected Parties and Impacts: This bill would directly impact individuals diagnosed with Alfi's syndrome and their families, as well as health insurance providers operating in Montana. It aims to improve access to essential medical services and reduce the financial burden on those affected by this rare condition.

Procedural and Timeline Considerations: This bill has been introduced in the Montana Legislature and is currently scheduled for a public hearing on June 24, 2025, in the Gardner Auditorium. The next steps would involve further committee review, potential amendments, and a vote by the full legislative body.

Compiled from official sources — confirm details with the bill’s official record.

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