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SR 48

A resolution to designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month.

2025-2026 Regular Session Introduced by Stephanie Chang and 3 co-sponsors

Michigan designates May 2025 as Ehlers-Danlos Syndrome Awareness Month to increase public recognition of the underdiagnosed genetic connective tissue disorder.

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Bill Summary · SR 48

Legislative bill overview

SR 48 is a symbolic resolution designating May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month in Michigan. The resolution recognizes EDS, a group of genetic connective tissue disorders, and encourages public awareness and education about the condition during that month.

Why is this important

Ehlers-Danlos Syndrome affects an estimated 1 in 2,500 to 1 in 5,000 people and is often underdiagnosed or misdiagnosed due to its varied presentations. Awareness designations can help increase public understanding, reduce diagnostic delays, and encourage healthcare providers to recognize symptoms more readily. This can improve quality of life for EDS patients who frequently face years of diagnostic uncertainty.

Potential points of contention

  • Resource allocation concern: Some may argue that symbolic resolutions don't allocate funding or resources to actually improve EDS diagnosis, research, or patient care—making it primarily ceremonial rather than substantive
  • Selection precedent: Questions about why EDS receives a full month designation while other rare diseases do not, and whether similar requests from other patient advocacy groups will follow
  • Limited scope: The designation applies only to Michigan and May 2025, limiting its long-term or widespread impact on national health policy or research funding

Compiled from official sources — confirm details with the bill’s official record.

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