WeVote
Log In

Bill

Bill

HR 462

A Resolution recognizing May 17, 2026, as "World Neurofibromatosis Awareness Day" in Pennsylvania.

2025-2026 Regular Session Introduced by Pat Gallagher and 9 co-sponsors

Pennsylvania recognizes World Neurofibromatosis Awareness Day on May 17, 2026, to promote NF awareness, education, and related community efforts.

Removed from table
0
WeVote Research Nonpartisan
Bill Summary · HR 462

Summary of HR 462 (Pennsylvania) – 2025-2026 Session

Title

A Resolution recognizing May 17, 2026, as “World Neurofibromatosis Awareness Day” in Pennsylvania.

Purpose and Intent

  • Establishes official recognition by the Pennsylvania General Assembly of World Neurofibromatosis Awareness Day on May 17, 2026.
  • Aims to raise awareness about neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerve tissue, and to highlight the impact on individuals and families.
  • Demonstrates the Legislature’s support for education, research, and resources related to NF.

Key Provisions

  • Proclaims May 17, 2026, as World Neurofibromatosis Awareness Day within the Commonwealth.
  • Encourages awareness activities, education, and outreach to inform the public, patients, caregivers, healthcare professionals, and schools about NF.
  • May include encouragement for state agencies, educational institutions, and organizations to observe or participate in NF awareness activities on or around the designated day.

Note: As a resolution, the bill primarily serves to recognize and commend rather than to mandate ongoing program funding or regulatory changes. It does not appear to establish new state programs or allocate funds, but it may direct recognition and provide a formal statement of the Legislature’s support.

Affected Parties

  • Individuals and families affected by neurofibromatosis.
  • Healthcare providers, researchers, patient advocacy groups, and educational institutions within Pennsylvania.
  • State government, including lawmakers and legislative staff, who issue and observe the resolution.

Procedural and Timeline Details

  • Referred to the House Committee on Health on March 31, 2026.
  • Reported as committed on April 14, 2026, indicating the bill has passed the committee stage with a recommendation to adopt.
  • As a concurrent or simple resolution, passage would typically require approval by both chambers (House and Senate) and signature by the Governor, unless it is a concurrent resolution without binding effect. The specific procedural status indicates it advanced through committee and is eligible for floor action.

Practical Impact

  • Provides formal recognition of NF awareness efforts in Pennsylvania, potentially aiding advocacy messaging and public education.
  • May serve as a platform for NF-related events, fundraising, and collaboration with state agencies and health organizations.
  • Does not specify new funding, regulatory changes, or program creation, but may enhance visibility for NF initiatives within the state.

Summary

HR 462 is a commemorative resolution recognizing World Neurofibromatosis Awareness Day in Pennsylvania on May 17, 2026. It codifies the Legislature’s support for NF awareness, education, and related community and healthcare efforts, without creating new programs or appropriations. The bill progressed from referral to the Health Committee and was reported as committed in mid-April 2026.

Compiled from official sources — confirm details with the bill’s official record.

Sign in to ask a question.