Bill

SRES 292

A resolution expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

119th Congress Introduced by Angela Alsobrooks and 2 co-sponsors

SRES 292 designates June 19, 2025, as World Sickle Cell Awareness Day, promoting awareness, equitable treatment access, and policy solutions for sickle cell disease.

Introduced in Senate

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Bill Summary · SRES 292

Summary of SRES 292: World Sickle Cell Awareness Day Resolution

Bill Number: SRES 292
Introduced: June 18, 2025
Status: Introduced in Senate
Classification: Resolution

Purpose and Intent

SRES 292 is a resolution expressing support for the designation of June 19, 2025, as World Sickle Cell Awareness Day. The primary aim is to enhance public awareness about sickle cell disease (SCD) both in the United States and globally. The resolution emphasizes the need for increased empirical research, early detection screenings, effective treatments, and preventative care programs related to sickle cell anemia and its complications.

Key Provisions

The resolution includes several important commitments and calls to action:

Support for Awareness Goals: The Senate expresses its support for the objectives of World Sickle Cell Awareness Day.
Equitable Access to Treatments: It commits to ensuring that all economic, racial, and ethnic groups have equitable access to new SCD treatments to improve health outcomes.
Global Policy Solutions: The resolution calls on the Department of Health and Human Services (HHS) to develop global policy solutions that support SCD initiatives, including newborn screening programs and therapeutic interventions.
Elimination of Barriers: It supports the removal of barriers to access innovative SCD therapies, particularly for vulnerable patients within Medicare and Medicaid systems.
Public Engagement: The resolution encourages individuals and organizations to hold events and activities on World Sickle Cell Awareness Day to raise awareness about SCD and related services.
Formation of an Interagency Group: It urges the President to establish a Sickle Cell Disease Interagency Group involving multiple federal agencies to develop policies that ensure equitable access to innovative therapies.
Addressing Bias in Healthcare: The interagency group is urged to consider options that not only facilitate access to potential curative treatments but also address the biases faced by populations most affected by SCD in healthcare systems.

Impact

The resolution aims to impact various stakeholders, including:

Individuals with Sickle Cell Disease: By promoting awareness and equitable access to treatments, the resolution seeks to improve health outcomes for those living with SCD.
Healthcare Providers: The call for increased awareness and policy changes may influence how healthcare providers approach SCD treatment and care.
Government Agencies: The resolution encourages collaboration among federal agencies to address SCD comprehensively.
General Public: By promoting events and activities, the resolution aims to educate the public about SCD, its complications, and available treatments.

Legislative Actions

2025-06-18: The resolution was referred to the Committee on Foreign Relations.

Related Bills

HRES 524 (Companion Bill)

This resolution represents a significant step towards raising awareness and improving the lives of those affected by sickle cell disease through coordinated efforts at multiple levels of government and society.

Compiled from official sources — confirm details with the bill’s official record.