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Bill

HR 568

A Resolution designating June 23, 2026, as "Dravet Syndrome Awareness Day" in Pennsylvania.

2025-2026 Regular Session Introduced by Johanny Cepeda-Freytiz and 16 co-sponsors

Designates June 23, 2026 as Dravet Syndrome Awareness Day in Pennsylvania to raise public awareness and honor those affected, without new mandates or funding.

Adopted
0
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Bill Summary · HR 568

Summary of HR 568 (2025-2026) — Pennsylvania

Purpose

  • Designates June 23, 2026, as “Dravet Syndrome Awareness Day” in Pennsylvania. The resolution aims to recognize Dravet syndrome, raise public awareness, and honor those affected by the condition.

Key Provisions

  • Establishes a ceremonial designation for a specific day within the Commonwealth of Pennsylvania.
  • No new statutory requirements or mandates for state agencies, individuals, schools, or health care providers appear in the text as provided. The resolution functions as a commemorative acknowledgment rather than creating duties or funding.

Who/What is Affected

  • Primarily symbolic impact at the state level:
    • State government and its offices may mark the day in official observances.
    • Public awareness and education efforts related to Dravet syndrome may be encouraged, though the bill does not specify funding or programs.
    • Individuals and organizations advocacy groups focused on Dravet syndrome may reference the designation in outreach and events.

Procedural/Timeline Details

  • Prime Sponsor: Representative Joe McAndrew (D), along with several co-sponsors from both committees.
  • Current Status: Referred to the House Health Committee on June 15, 2026.
  • There are no votes recorded or committee hearings listed in the provided text.
  • As a resolution, it does not create or alter statutory requirements but serves to acknowledge and encourage awareness.

Additional Context

  • The bill text references a co-sponsorship memo and designations for Dravet Syndrome Awareness Day, indicating an intent to promote education and visibility around Dravet syndrome within Pennsylvania.
  • The action history shows standard legislative processing for a concurrent resolution, with referral to a relevant committee for consideration.

If you’d like, I can compare this to similar Dravet awareness resolutions in other states or provide background on Dravet syndrome to accompany the legislative context.

Compiled from official sources — confirm details with the bill’s official record.

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